Direct Child & Family Services
- Interactive Health Education: www.TeenHealthFX.com - Children’s Medical Center of Morristown Memorial Hospital’s interactive health education website provides teens with answers to all types of medically related questions. Teens can get confidential, direct answers to their specific medically-related questions and also see answers that are posted so they know there are others who share similar issues.
- PBS Tween Site – It’s My Life: www.pbskids.org/itsmylife - It's My Life is funded by the Corporation for Public Broadcasting and designed to create safe, engaging, and educational online media for kids aged 9 to 12. Also available in Spanish.
- Society of Adolescent Medicine: www.adolescenthealth.org - SAM is a multi-disciplinary organization of health professionals who are committed to advancing the health and well-being of adolescents. Through education, research, clinical services, and advocacy activities, members of the Society for Adolescent Medicine strive to enhance public and professional awareness of adolescent health issues among families, educators, policy makers, youth-serving organizations, students who are considering a health career as well as other health professionals.
- Starbright World: www.starbrightworld.org - Provided by Starlight Children's Foundation. An online social network for teens with chronic and life-threatening medical conditions, and their siblings. Sick teens are able to connect with other teens who are at home or in the hospital. Users post pictures, chat, post blogs and bulletins and find new friends in similar situations.
- Canadian Paediatric Society, Adolescent Medicine Committee. (2008). Issues of care for hospitalized youth. Paediatric Child Health, 13, 61-64.
Position statement discussing the impact of hospitalization on teens, normal adolescent growth and development, design of services for hospitalized teens, and legal and ethical considerations.
- Canadian Paediatric Society, Adolescent Medicine Committee. (2006). Care of adolescents with chronic conditions. Paediatric Child Health, 11, 43-48.
Position statement discussing the effects of chronic illness on adolescents including developmental issues such as independence and assertiveness, peer relationships, school and work, physical appearance, sexuality, death and dying. Includes section on recommendations for care.
- Michaud, P.-A., Suris, J.-C., & Viner, R. (2004). The adolescent with a chronic condition. Part II: Healthcare Provision. Archives of Disease in Childhood, 89, 943-949.
Discusses issues related to disclosure of diagnosis, adherence to therapy, need for interdisciplinary network approach, lifestyles’ anticipatory guidance and prevention and transition into adult health care.
- Payne, D., Martin, C., Viner, R., & Skinner, R. (2005). Adolescent medicine in paediatric practice. Archives of Disease in Childhood, 90, 1133-1137.
Adolescent medicine in the UK. Has some comparisons of adolescent behavior and healthcare in the UK, New Zealand, US and Australia. Contains information on communication with adolescents, establishing confidentiality and how to ask questions. Includes a guide for taking an adolescent psychosocial history.
- Suris, J.-C., Michaud, P.-A., & Viner, R. (2004). The adolescent with a chronic condition. Part 1: Developmental issues. Archives of Disease in Childhood, 89, 938-942.
Analyzes the reciprocal effects of chronic conditions on adolescent development. Reviews the effect of chronic disease on growth and puberty and on psychosocial development and the effect of developmental issues on the course and management of chronic disease.
- Christie, D., & Viner, R. (2005). Adolescent development. BMJ, 330, 301-304.
- Gantt, L. (2002). As normal a life as possible: Mothers and their daughters with congenital heart disease. Health Care for Women International, 23, 481-491.
- Klassen, A. F., Miller, A., & Fine, S. (2004). Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics, 114(5), e541-e547.
- Murphy, N. A., & Elias, E. R. (2006). Sexuality of children and adolescents with developmental disabilities. Pediatrics, 118(1), 398-403.
- Sapin, C., Simeoni, M. C., El Khammar, M. Antoniotti, S. & Auquier, P. (2005). Reliability and validity of the VSP-A, a health-related quality of life instrument for ill and healthy adolescents. Journal of Adolescent Health, 36(4), 327-336.
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- Documentation/Descriptive Words : This resource was created by Ruth Herold, CTRS and Kristin Ogren, OTR/L of Overlake Hospital and Medical Center, Bellevue, WA. The list was submitted to CLC By Sandra Breiner, CCLS.
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- I'm Mad (Dealing with Feelings) By Elizabeth Crary. ISBN: 0943990629
- Is It Right to Fight? A First Look at Anger By Pat Thomas. ISBN: 0764124587
- The Angry Child, Regaining Control when Your Child Is Out of Control By Tim Murphy, PhD. ISBN: 060960676X
- The Explosive Child By Ross W. Greene. ISBN: 006077939X
- The Incredible Years, A Trouble-Shooting Guide for Parents of Children Aged 3-8 By Carolyn Webster-Stratton, PhD. ISBN: 1895642027
- When Kids Are Mad, Not Bad: A Guide to Recognizing and Handling Your Child’s Anger By Henry A. Paul, MD. ISBN: 0425166813
- Helping Your Anxious Child: A Step-By-Step Guide for Parents By Sue Spence, Vanessa Cobham, Ann Wignall, Ronald Rapee. ISBN: 1572241918
- Bullies are a Pain in the Brain By Trevor Romain, Elizabeth Verdick. ISBN: 1575420236
- My Secret Bully By Trudy Ludwig, Abigail Marbel, Susan Wellman. ISBN: 1582461597
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For the list of recommended resources for preparing for the Child Life Certification Examination, please visit Preparing for the Exam.
- Working with Children in Hospitals By Emma N. Plank (Paperback, 3rd Edition). Available from MetroHealth Medical Center. Also available: "Emma Plank Tribute: Celebrating 50 Years of Child Life" DVD. To purchase, download and submit an Order Form from MetroHealth Medical Center.
- Adolescence by Laurence Steinberg. ISBN: 0072917873.
Thorough research and a contextual approach emphasize the reality of being an adolescent in society.
- The Amazing Infant by Tiffany Fields. ISBN: 9781405153928
Integrates research, theory, and real life experiences and practices to provide a closer look at how infancy research is conducted.
- Child Development: Principles and Perspectives (2nd Edition) by Joan Littlefield Cook and Greg Cook. ISBN: 0205494064
Focuses on how to promote positive child development by putting the science to work outside of the classroom.
- The Developing Person Through the Lifespan by Kathleen Stassen Berger, ISBN: 978-1-429-21626-5
Presents theory, research, practical examples, and policy issues in a way that inspires students to think about human development—and about the individual’s role in the community and the world.
- Discovering Child Development (2nd Edition) by Carol Lynn Martin & Richard Fabes, ISBN: 0547003617
Demonstrates the ways in which people, contexts, and experiences affect development, and why early childhood is so unique.
- The Happiest Baby on the Block by Harvey Karp. ISBN: 0-553-38146-6. DVD also available.
A guide to caring for the infant, specifically related to triggering the calming reflex.
- Developmental Considerations for Caregiver Interventions - Directed at caregivers, this brochure provides explanations of age-related issues, stressors, and behaviors, along with suggested interventions to assist in coping with hospitalization and medical procedures. Submitted by Andrea Mangione Standish, CCLS, Children's Hospital Orange County (CHOC), Orange, CA.
- Developmental Milestones Pamphlet - A concise pamphlet describing normal developmental milestones for children ages 0-5 from a perspective of getting early intervention services if the child does not seem to be meeting the milestones. Submitted by Jane Heser, Child Life Specialist, Mayo Eugenio Litta Children’s Hospital, Rochester, MN.
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CLC has compiled a list of Web resources on helping children and families cope with disasters, violence and trauma.
Resources Available through CLC
- AboutOurKids.org: www.AboutOurKids.org - provides information and offers advice for parents, educators, and mental health and medical professionals to help children cope with war and terrorism.
- The American Academy of Pediatrics: www.aap.org
- The American Academy of Experts in Traumatic Stress: www.crisisinfo.org - offers several helpful guides for purchase.
- The American Academy of Child and Adolescent Psychiatry: www.aacap.org- has information on post-disaster response to children following catastrophes such as earthquakes, hurricanes, tornados, floods, fires and violent acts.
- The American Psychological Association: www.apa.org - provides Practice Guidelines and descriptions of signs of trauma in children and adolescents, and guidance for parents of children, by age.
- The American Psychological Association Help Center: www.apahelpcenter.org - has online resources designed to help people manage stress and trauma related to Disaster and Terrorism
- Centers for Disease Control: www.bt.cdc.gov
- Agents, Diseases, & Other Threats: provides useful information on various types of emergencies, including bioterrorism and chemical emergencies, natural disasters and others. Resources and tips on preparedness, safety, and confronting mental health and traumatic stress issues.
- Childswork/Childsplay and The Guidance Channel: offers resources to help children deal with their fears and anxiety
- The International Critical Incident Stress Foundation: www.icisf.org - has a useful set of articles and resources specific to both adults and children who have experienced a critical incident or traumatic event.
- I Saw it Happen: A Child's Workbook About Witnessing Violence By Wendy Deaton. ISBN: 0897932412
- LDOnline: www.ldonline.org - has age-appropriate guidelines for children with learning disabilities.
- National Association for the Education of Young Children: www.naeyc.org - provides strategies that can help parents and other adults give children the emotional support they need.
- The National Center for Children Exposed to Violence (NCCEV) at the Yale Child Study Center offers guidance for parents: http://www.nccev.org/docs/children_war.pdf
- The National Education Association: www.nea.org - offers a School Crisis Communication Guide & Toolkit.
- The National Institute of Mental Health: www.nimh.nih.gov - offers resources on helping children and adolescents cope with violence and disasters.
- The National Institute for Trauma and Loss in Children: www.starrtraining.org/trauma-and-children - provides resources and direct services to traumatized children and families.
- The National Mental Health Association: www.nmha.org - provides information on helping children handle disaster-related anxiety.
- Nickelodeon: www.nick.com - offers “Parent Talk” on the subject of violence.
- Rainbows and Silver Linings Community Crisis Response Program: www.rainbows.org
- The Red Cross: www.redcross.org - has a Web page that offers tips on helping young children cope with trauma
- Sesame Street Parents: www.sesameworkshop.org - offers suggestions for ways to talk to your child about tragic events
- Talking with Kids: www.talkwithkids.org - offers tips and techniques for talking with young children about tough issues.
- Zero to Three: www.zerotothree.org/ has advice on addressing disaster relief and trauma with toddlers.
September 11th Resources
- 9-11 Healing and Remembrance Program Wellness Tips for Children: A series of tips for adults on helping children cope with the September 11 anniversary. Includes a list of other helpful resources, and a printable document with additional tips and answers to frequently-asked questions for parents and caregivers.
- AboutOurKids.org - Kids and Terrorism: Supporting Our Children in Times of Crisis: A compilation of written and verbal testimony of Robin Goodman, PhD, Director, Public Education Programs & AboutOurKids.org, New York University Child Study Center, New York, New York, on behalf of the New York University Child Study Center. A list of additional helpful links and resources is provided in the callout box on the right side of the page.
- Discussing 9/11 With Kids: The 10th Anniversary: Red-Hot Parenting - A Parents.com Blog by Richard Rende, PhD
Parents wrestle with a number of questions about the best ways to discuss the landmark event of the September 11th Anniversary with their children. This blog offers some suggestions to consider. Read More
- HealthyChildren.org - Kids Will Be Thinking About 9/11: Here's How to Help Them: A brief article from the American Academy of Pediatrics (AAP), with links to other helpful resources.
- The National Child Traumatic Stress Network - 9/11 Resources: For the tenth anniversary of 9/11, the National Child Traumatic Network (NCTSN) compiled a directory of resources for families, youth, educators, disaster response workers, medical personnel, and mental health professionals to help them deal both with recurring reactions and with current stresses and adversities.
- Ten Years After 9/11: What Have We (Not Yet) Learned?
This article addresses the traumatic impact of disaster, and specifically the impact of the death of a family member or friend as a result of disaster, and the ways that the 10th anniversary of the September 11 attacks can serve as a reminder, "...not only of the profound and enduring impact a major disaster can have on the lives of children and families but also the potential our field has to improve the adjustment and coping of children who are faced with crisis and loss."
- Aiken, L. H., Clarke, S. P., & Sloane, M. M. (2002). Hospital staffing, organization, and quality of care: Cross-national findings. Nursing Outlook, 50, 187-194.
- American Academy of Pediatrics Committee on Hospital Care. (2003). Family-centered care and the pediatrician's role. Pediatrics, 112, 691-696.
- Canadian Council on Health Services Accreditation. (2006). CCHSA's accreditation program: Critical care. Ottawa: Author.
- Craft-Rosenberg, M., & Krajicek, M. J. (2006). Nursing excellence for children and families. New York, NY: Springer Pub. Co.
- Franck, L. S., & Callery, P. (2004). Re-thinking family-centered care across the continuum of children's healthcare. Child: Care, Health, and Development, 30, 265-277.
- Heller, K. S., & Solomon, M. Z. (2005). Continuity of care and caring: What matters to parents of children with life-threatening conditions. Journal of Pediatric Nursing, 20, 335-346.
- Just, A. C. (2005). Parent participation in care: Bridging the gap in the pediatric ICU. Newborn and Infant Nursing Reviews, 5(4), 179-187.
- Kassity, N., & Lockridge, T. (1999). Should parents participate in patient rounds in the NICU? American Journal of Maternal Child Nursing, 24(2), 64-65.
- Kissoon, N. (2005). Bench to bedside review: Humanism in pediatric critical care medicine - a leadership challenge. Published online http://ccforum.com/content/9/4/371
- Law, M., Teplicky, R., King, S., King, G., Kertoy, M., Moning, T., et al. (2005). Family-centered service: moving ideas into practice. Child: Care, Health and Development, 31(6), 633-642.
- Layder, D. (1998). Sociological practice: Linking theory and social research. Thousand Oaks, CA: Sage.
- Stevens, C. W. (2004). Why families no longer wait outside our ICU doors. Nurse Leader, 2(5), 47-49.
- Storch, J. (2005). Patient safety: Is it just another bandwagon? Canadian Journal of Nursing Leadership, 18(2), 39-55.
- Varcoe, C., & Rodney, P. (2002). Constrained agency: The social structure of nurses' work. In B. S. Bolaria & H. D. Dickinson (Eds.), Health, illness, and health care in Canada (pp. 102-128). Scarborough, ON: Nelson Thompson Learning.
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Going to the Hospital/Doctor
The following is an abbreviated list of publications, with summaries provided by the Professional Resources Committee. To review a more extensive list of resources, download a complete, printer-friendly list of Books on Going to the Hospital , suggested by child life specialists. Before recommending any book listed here, the Professional Resources Committee strongly encourages you to preview the publication and determine whether it is appropriate for your specific program and patient population.
- Pooh Plays Doctor By K.W. Zoehfeld. ISBN: 0786831243. (Infants and preschoolers)
Using Christopher Robin's doctor kit, Pooh finds out about reflexes, heartbeats, blood pressure, and shots. Pooh is not sick but when told he has to go to the doctor, says he starts to feel sick. Basic and light. Good simple intro to common items.
- Going to the Hospital…What Will I See?: And Who are Those People Wearing Funny Clothes By Wood, J.R. (2009). AuthorHouse. ISBN: 1438938624
Helps to familiarize children and their families with the initial procedures when hospitalized.
- Franklin Goes to the Hospital By S. Jennings. ISBN: 0439083702. (Ages 4-7)
Franklin the Turtle has to go to the hospital for an operation because he cracked his shell. Franklin goes through the hospital admission procedure, after hearing his friends and family tell him how brave he is. Franklin holds up well until he gets to the X-ray room. The doctor explains what an X-ray can and can't do, and what fear and bravery are all about. The book explains the hospital procedure well and addresses the fears children have about the doctor and hospitals. Recommend use with parent or child life specialist.
- Rita Goes to the Hospital By Martine Davison. ISBN: 0679818200. (Ages 5-7)
This book is well done, but may not seem universally applicable due to the main character's unique condition (a clotting difficulty). With the help of friendly staff members, Rita enjoys her visit to the hospital to have her tonsils taken out. Great explanation of what to expect.
- Chris Gets Ear Tubes By B. Pace. ISBN: 093032336X. (Ages 5-7).
Describes the experience of a young boy whose chronic ear infections are affecting his hearing, until he goes into the hospital for a simple operation. Depicts some common hospital scenes. Good for use with parents/child life specialists.
- Tubes in My Ears: My Trip to the Hospital By V. Dooley. ISBN: 1572551186. (Ages 5-8)
A child who had to have ear tubes inserted, describes his hospital experiences. His language maintains a childlike perspective, but provides essential information. Additional facts, such as explanations of instruments, appear in boxes.
- The Hospital Book By J. Howe 1981, 1994.
Black and white photos, recommended for use with a child life specialist. Simple explanations.
- The Children's Hospital Guide to Your Child's Health and Development by Alan D., Md. Woolfelt, et al., Children's Hospital Boston. Published in 2001. ISBN: 0738207438. (For parents)
Single work offers parents all the medical, psychological, and practical information to raise healthy children from birth through elementary school. The Children's Hospital Guide includes the charts of normal development at all ages, and a comprehensive resource section.
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- Compassionate Friends: www.compassionatefriends.org - The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
- Drawn Together: http://www.agoodgroup.com/drawntogether/resources.htm - Provides a helpful list of papers, articles and handouts related to grief and bereavement.
- M.I.S.S. Foundation: www.missfoundation.org - The MISS Foundation is a volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.
- The Centering Corporation: www.centering.org - The Centering Corporation is a non-profit organization dedicated to providing education and resources for the bereaved.
- The Dougy Center: www.dougy.org - The Dougy Center provides education, training and peer support groups to give children, teens, young adults and their families who are grieving a death a safe and supportive place to share their stories.
- A Story for Hippo: A Book About Loss By Simon Puttock and Alison Bartlett
- After the Funeral. Winsch, J.L. and Keating, P.T. (1995). Paulist Press. ISBN: 0809166259
- Becky and the Worry Cup By Wendy Harpham. ISBN: 0060952113
- Death is Hard to Live With By Janet Bode. ISBN: 0606074260
- Each Living Thing By Joanne Ryder. ISBN: 0152018980
- Fire in My Heart, Ice in My Veins: A Journal for Teenagers Experiencing a Loss By Enid Samuel Traisman. ISBN: 1561230561
- From Erin With Love: Knowledge of Life After Death By Helen M. Fisher. ISBN: 0964765217
- Grandad’s Prayers of the Earth By Douglas Wood
- Grief: A Natural Reaction to Loss (second edition), By Marge Eaton Heegard. ISBN: 0756787246
- Goodbye My Child By Margaaret M. Pike, Shari B. Enbody (Illustrator), Sara R. Wheeler. ISBN: 1561230529
- Healing the Bereaved Child: Grief Gardening, Growth Through Grief and Other Touchstones for Caregivers By Alan D. Wolfelt. ISBN: 1879651106
- Help Me Say Goodbye: Activities for Helping Kids Cope When a Special Person Dies By Janis Silverman. ISBN: 1577490851
- Helping Children Cope with Loss and Separation By C. Jewett. ISBN: 1558320512
- How it feels when a Parent Dies By Jill Krementz. ISBN: 0394758544
- How To Help Children Through a Parent’s Serious Illness: Supportive Practical Advice From a Leading Child Life Specialist By Kathleen McCue (available through the CLC Book Store). ISBN: 0312146191
- If Nathan Were Here. Bahr, M. (2002) . Eerdmans Books for Young Readers. ISBN: 0802852351
- I Miss You: A First Look at Death By Pat Thomas. ISBN: 0764117645
- I Wish I Could Hold Your Hand: A Child’s Guide to Grief and Loss By Palmer, P. (1994) Impact Publishers. ISBN: 0915166828
- Learning to say Goodbye By Eda LeShan
- Letters from a Friend: A Sibling's Guide for Coping and Grief (Death, Value and Meaning Series) By Erika Barber. ISBN: 0895032481
- Lifetimes: A Beautiful Way to Explain Death to Children By Brian Mellonie and Robert Ingpen. ISBN: 0553340239
- My Many Coloured Days By Dr. Seuss. ISBN: 0099266598
- Nana Upstairs & Nana Downstairs By Tomie DePaola. ISBN: 0698118367
- Once Upon a Lifetime ...Take Time to Record the Stories of your Life By Patricia Williams. ISBN: 0968140009
- Preparing the Children: Information and Ideas for Families Facing Terminal Illness and Death By Kathy Nussbaum. ISBN: 0966549600
- Sad Isn’t Bad: A Good-Grief Guidebook For Kids Dealing With Loss By Michaelene Mundy. ISBN: 0870293214
- Saying Goodbye to your Pet By Marge Heegard. ISBN: 1577491068
- The Tenth Good Thing About Barney By Erik Blegvad. ISBN: 0689712030
- The Bereaved Parent By Harriet Sarnoff Schiff. ISBN: 0140050434
- The Fall of Freddie the Leaf: A Story of Life for All Ages By Leo Buscaglia. ISBN: 0805010645
- The Next Place By Warren Hanson (Illustrator). ISBN: 0931674328
- The Very Hungry Caterpillar By Eric Carle. ISBN: 0241003008
- Understanding Grief: Helping Yourself Heal By Alan D. Wolfelt. ISBN: 1559590386
- Waterbugs and Dragonflies By Doris Stickney. ISBN: 082981180X
- Wemberly Worried By Kevin Henkes. ISBN: 0439288274
- What Will I Tell the Children By Jacque Bell & Linda Esterling. ISBN: B00072M3B0
- When a Parent is Sick: Helping Parents Explain Serious Illness to Children By Joan Hamilton. ISBN: 1895900409
- When Children Grieve: For Adults to Help Children Deal With Death, Divorce, Pet Loss, Moving, And Other Losses. By James, J. & Friedman, R. ISBN: 0060084294
- When Dinosaurs Die: A Guide to Understanding Death (Dinos Die) By Laurie Krasny Brown, Marc Brown. ISBN: 0316119555
- When Parents Die By R. Abrams. ISBN: 1852381930
- When Someone Has a Very Serious Illness: Children Can Learn to Cope With Loss And Change By Marge Heegaarde. ISBN: 0962050245
- When Someone Very Special Dies: Children Can Learn to Cope With Grief By Marge Heegaard. ISBN: 0962050202
- When Something Terrible Happens: Children Can Learn to Cope with Grief By Marge Heegaard. ISBN: 0962050237
Just For Teens
- Facing Change: Coming Together in the Teen Years By Donna O'Toole. ISBN: 1878321110
- Fire in My Heart, Ice in My Veins: A Journal for Teenagers
- I Will Remember You: A Guidebook Through Grief for Teens By Elena Lister
- Straight Talk About Death for Teenagers: How to Cope with Losing Someone You Love By Earl A. Grollman. ISBN: 0807025011
- Teens Face to Face with Bereavement By K. Gravelle & C. Haskins
- The Healling Your Grieving Heart Journal for Teens (Healing Your Grieving Heart series) by Alan D. Wolfelt . ISBN: 1879651335
- "A Teen's View of Grief: An Educational Videotape for Bereavement Caregivers" by Alan D. Wolfelt www.centerforloss.com (companion bookstore)
- “A Child’s View of Grief: An Educational Videotape for Bereavement Caregivers" by Alan D. Wolfelt www.centerforloss.com (companion bookstore)
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- ZERO TO THREE: www.zerotothree.org - ZERO TO THREE's mission is to support the healthy development and well-being of infants, toddlers and their families. This national nonprofit multidisciplinary organization advances its mission by informing, educating and supporting adults who influence the lives of infants and toddlers.
- Birth Defect Research for Children, Inc.: www.birthdefects.org - Birth Defect Research for Children, Inc. (BDRC) is a nonprofit organization that provides parents and expectant parents with information about birth defects and support services for their children.
- Wong's Nursing Care of Infants and Children: The High Risk Newborn and Family - This chapter PDF excerpt explains, in detail, common diagnoses, treatment, and procedures relevant to the NICU population.
- Emotional Life of the Toddler. A.F. Lieberman (1995). ISBN-13: 978-0028740171
- Infants, Toddlers, and Caregivers (4th ed.) by J. Gonzalez-Mena & D.W. Eyer (1996). ISBN-13: 978-1559347020
- Watching Bradley Grow: A Story About Premature Birth By Elizabeth Murphy-Melas, Diane Tate (Illustrator). ISBN: 1563522829
- McKenna, J. J., & Mosko, S. (1990). Evolution and the Sudden Infant Death Syndrome (SIDS): III. Infant arousal and parent infant co-sleeping. Human Nature, 1, 291-330.
- Morelli, G. A., Rogoff, B., Oppenheim, D., & Goldsmith, D. (1992). Cultural variation in infants’ sleeping arrangements: Questions of independence. Developmental Psychology, 28, 604-613.
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Medicine-Taking / Injections
- Don't You Feel Well, Sam? By Amy Hest. ISBN: 0763610097
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- International Association for the Study of Pain (IASP): www.iasp-pain.org - International Association for the Study of Pain (IASP) has the Pediatric Pain Sourcebook of Protocols, Policies and Pamphlets - a publication designed to provide easy access to standard pediatric pain management information.
- Blount, R. L., Bachanas, P. J., Powers, S. W., Cotter, M. C., Franklin, A., Chaplain, W., et al. (1992). Training children to cope and parents to coach them during routine immunizations: Effects on child, parent, and staff behaviours. Behaviour Therapy, 23, 689-705.
- Cohen, L.L. et al. (2000). Easier said than done: What parents say they do and what they do during children's immunizations. Children's Health Care, 29(2), 79-86.
- Kleiber, C., & Harper, D. C. (1999). Effects of distraction on children's pain and distress during medical procedures: A meta-analysis. Nursing Research, 48(1), 44-49.
- Kurfis Stephens, B., Barkey, M. E., & Hall, H. R. (1999). Techniques to comfort children during stressful procedures. Advances in Mind-Body Medicine, 15, 49-60.
- Lang, E. V., Hatsiopoulou, O., Koch, T., Berbaum, K., Lutgendorf, S., Kettenmann, E., et al. (2005). Can words hurt? Patient-provider interactions during invasive procedures. Pain, 114, 303-309.
- Manimala, M. R., Blount, R. L., & Cohen, L. L. (2000). The effects of parental reassurance versus distraction on child distress and coping during immunizations. Children's Health Care, 29(3), 161-177.
- Piira, T., Taplin, J.E., Goodenough, B., von Baeyer, C.L. (2002). Cognitive-behavioral predictors of children’s tolerance of laboratory-induced pain: Implications for clinical assessment and future directions. Behavioral Research Therapy, 40(5), 571-584.
- Magic Glove Inservice : An inservice on pain management created by Andrea Mangione Standish, CCLS for Child Life, Nursing and Phlebotomy Staff.
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- Centering Corporation: www.centering.org - The Centering Corporation is a non-profit organization dedicated to providing education and resources for the bereaved.
- Dougy Center: www.dougy.org - The Dougy Center provides education, training and peer support groups to give children, teens, young adults and their families who are grieving a death a safe and supportive place to share their stories.
- Initiative for Pediatric Palliative Care: www.ippcweb.org - The Initiative for Pediatric Palliative Care is an educational and quality improvement effort to enhance family-centered care of children with life-threatening conditions. IPPC's curriculum and video series contain instructional materials organized around six key domains of pediatric palliative care. Curriculum guides and QI tools are available to download for free.
- World Health Organization: www.who.int/cancer/palliative
- Armfuls of Time: The Psychological Experience of the Child with a Life-Threatening Illness By Barbara M. Sourkes. ISBN: 0822955652
- Final Gifts: Understanding the special awareness, needs, and communications of the dying By Maggie Callanan and Patricia Kelley. ISBN: 0553378767
- The Private Worlds of Dying Children (Princeton University Press, 1980) and
In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child (Princeton Denise The Psychosocial Aspects of Cystic Fibrosis, co-published by Arnold Publishing Co in the UK & Oxford University Press in New York, 2001.) By Myra Bluebond-Langner. ISBN: 0691028206
- When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families (2003) By Marilyn J. Field and Richard E. Behrman, Editors, Board on Health Sciences Policy, Institute of Medicine (available through www.nap.edu). ISBN: 0309084377
- American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. (2000). Palliative care for children. Pediatrics, 106, 351-7.
- Browning, D. (2002). To show our humanness - relational and communicative competence in pediatric palliative care. Bioethics Forum, 18(3/4), 23-28.
- Colomon, MZ, Dokken, D., Fleischman, A., Heller, K., Levetown, M., Rushton, C.H., Sellers, D. and Truog, R. for IPPC. (2002). The initiative for pediatric palliative care (IPPC): Enhancing Family-Centered care for children with life-threatening conditions through research, education and quality improvement. Background and goals. Newton , MA : Education Development Center, Inc.
- Contro, N. et al. (2002). Family perspectives on the quality of pediatric palliative care. Archives of Pediatric Adolescent Medicine , 156, 14-19.
- Himelstein, B.P., Hilden, J. M., Morstad Boldt, A., Weissman, D. (2004). Pediatric palliative care. New England Journal of Medicine , 350, 1752-62.
- Toce, S. and Collins, MA. (2003). The FOOTPRINTS model of pediatric palliative care. Journal of Palliative Care, 6(6), 989-1000.
- "Making Every Moment Count" by Leora Kuttner - available through Fanlight Productions www.fanlight.com
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- Phlebotomy Inservice : Notes used to give an inservice on working with pediatric patients during phlebotomy procedures. Submitted by Jenni Smith, Driscoll Children’s Hospital, Corpus Christie, TX.
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- CLC Evidence-Based Practice Statement on Therapeutic Play: "Therapeutic Play in Pediatric Health Care: The Essence of Child Life Practice" - Visit the Evidence-Based Practice Statements section to read a one-page summary, or to download a printer-friendly version of the complete statement.
- Toy Industry Association: www.toyassociation.org - Toy Industry Association (TIA) is a nonprofit trade association for producers and importers of toys and youth entertainment products sold in North America. The website provides a wealth of information about play, including: play ideas for different age groups; how children at different age groups play and how that play relates to development; toy specific issues such as safety; ethics around toy manufacturing ; and even the importance of play for adults!
- Therapeutic Play Activities for Hospitalized Children by Robyn Hart. ISBN: 0801616360
- Pretend Play as Improvisation: Conversations in the Preschool Classroom by R. Keith Sawyer. ISBN: 978-0805821192
- The American Toy Institute (1994). Toy Manufacturers of America guide to toys and play. [Brochure]. New York NY: Author.
Discusses such topics as learning through play, parental involvement in play, safety (including a checklist to help caregivers determine whether or not a potential toy is safe, and how to determine if a toy’s label is the best determiner of the toy’s appropriateness for a child), and toy selection ( which gives caregivers a brief description of the developmental ages and stages and how to choose toys for each). Read Online Version of Brochure
- Cole-Hamilton, I., Harrop, A & Street, C. (2002) The value of children's play and play provision. A systematic review of the literature. London: New Policy Institute.
This article out of the UK set out to look at what initiatives have been taken to meet Article 31(2) of the UN Convention on the rights of the Child and the provision of opportunities to take part in recreation and leisure activities. The article discussed definitions of play, the importance of play and research on the developmental, social and health benefits of play. The article does specifically mention play and the sick or hospitalized child, discussing that research has indicated that play can help hospitalized children to feel less anxious about medical treatment, but goes on to say that play in such a context is essentially play that is not “freely chosen” or “personally directed” and therefore the article includes no further discussion of play specific to healthcare. Retrieve Online at http://www.npi.org.uk/files/New%20Policy%20Institute/play%20literature.pdf
- Early Childhood Learning Knowledge Centre (2006). Let the children play: Nature’s answer to early learning. Canadian Council on Learning.
Outlines the changing nature of play in Canada throughout history, what children learn from play, creating opportunities for play, play and literacy, value of outdoor play and challenges for the future. Gives some tips for facilitating play. Read Article
- Fernie, D. The nature of children's play. Urbana, IL: ERIC Clearinghouse on Elementary and Early Childhood Education. (ERIC Digest No. ED307967 88).
Article discusses Sensorimotor Play, Pretend Play and Games with Rules and how these different types of play relate to development. Also discusses the role of adults in children’s play. Read Article
- Ginsburg, K. R. (2007) The importance of play in promoting healthy child development and maintaining strong parent-child bonds. Pediatrics. 119 (1): 182-191. Read Abstract
- Isenberg, J.P. & Quisenberry, N. (2002) Play: Essential for all children; A position paper of the Association for Childhood Education International. Outlines research describing the importance of play and pushes for play to be recognized as a vital part of development. Retrieve Online at www.acei.org/playpaper.htm
- D’Antonio, I. J. (1989). The use of humor with children in hospital settings. In McGhee, P. E. (Ed.)., Humor and Children’s Development: A guide to practical applications (pp. 157-171). New York: Haworth.
- D’Antonio, J. (1984). Therapeutic use of play in hospitals. Nursing Clinics of North America, 19(2), 459-462.
- Gariépy, N & Howe, N. (2003) The therapeutic power of play: examining the play of young children with leukemia. Child: Care, Health & Development, 29(6):523-537.
- McGrath, P., & Huff, N. (2001). “What is it?” Findings on preschooler’s responses to play with medical equipment. Child Care, Health and Development, 27, 451.
- Zahr, L. K. (1998). Therapeutic play for hospitalized preschoolers in Lebanon. Pediatric Nursing, 23, 449.
- Zimmer, L. (1999). Partnering with puppets: A therapeutic tool. Child Life Focus, Child Life Council Bulletin, 1, 1.
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- Association for Play Therapy: www.a4pt.org - The mission of the Association for Play Therapy (APT) is to promote the value of play, play therapy, and credentialed play therapists.
- Center for Creative Play: http://www.letkidsplay.com/center_for_creative_play.html - Center for Creative Play® is a national leader in the design and development of all inclusive play environments. Since its creation in 1995, CFCP’s mission has expanded to include promoting the importance of play for all children.
- Playing for Keeps: http://www.childrensmuseums.org/programs/playingforkeeps.htm - Playing for Keeps was founded in 1998 to promote and protect the role of play in our society. ACM adopted the former nonprofit as one of its leadership initiatives in 2008. It exists to help bridge the gap between what researchers have learned about play, and what parents and professionals need to know to help nurture children to their full potential.
- Playful Approaches to Serious Problems: Narrative Therapy with Children and their Families By Jennifer Freeman. ISBN: 0393702294
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Positions for Comfort
- "Positioning for Comfort" Poster, available through the Children's Hospital of Philadelphia. To purchase, download and submit an Order Form from CHOP.
- Saint Joseph's Children's Hospital Marshfield Clinic: Positioning for Comfort - This Power Point PDF presentation outlines the clinical aspects of utilizing positions of comfort in Child Life direct care. The author provides credit to the pioneers of positions of comfort, as well as background information on why these positions should be used. The presentation then describes the different positions and includes photograph demonstrations.
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- CLC Evidence-Based Practice Statement on Preparation: "Preparing Children and Adolescents for Medical Procedures" - Visit the Evidence-Based Practice Statements section to read a one-page summary, or to download a printer-friendly version of the complete statement.
- Tracheostomy Therapy Ideas (Passy-Muir, Inc.): http://www.passy-muir.com/therapy - This website provides therapy ideas and resources for working with children with a tracheostomy.
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- Dayton Children's: What is an MRI? - This PDF is a photo preparation book that walks patients through the process of having an MRI using sensory words.
- Starlight Children's Foundation: Medical Imaging: Welcome to the Radiology Center - This website is an interactive educational tool for teaching children about medical imaging. Children can watch, play and learn about radiology equipment, medical staff, and testing procedures by following animated patients throughout the imaging process.
- Jessica's X-ray By Pat Zonta. ISBN: 1552975770
- Nordahl, C.W., Simon, T. J., Zierhut, C., Solomon, M., Rogers, S. J., & Amard, D.G. (2008). Brief report: Methods for acquiring structured MRI data in very young children with autism without the use of sedation. Journal of Autism and Developmental Disorders, 38, 1581-1590.
An article providing information related to a study to help young children with autism complete an MRI without sedation.
- VCUG Prep Book : Created by Teresa Fagan McDonald, CCLS, California Pacific Medical Center, San Francisco, CA
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SuperSibs!: www.supersibs.org - SuperSibs! is a national nonprofit organization to honor, support and recognize brothers and sisters of children with cancer. Children residing in the United States and Canada and are between the ages of 4-18 are offered free services to help bring them comfort and joy during and after such a challenging time in their lives.
- On Mother’s Lap By Glo Coalson (Illustrator), Ann Herbert Scott (Author), also available in Spanish.
- Peter’s Chair By Ezra Jack Keats
- The Berenstain Bears New Baby By Stan and Jan Berenstain. ISBN: 0394829085
- The New Baby By Fred Rogers. ISBN: 0698113667
- The New Baby By Mercer Mayer. ISBN: 0375826319
- When Molly Was in the Hospital: A Book for Brothers and Sisters of Hospitalized Children By D. Duncan . ISBN: 1877810444
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- Blueberry Eyes By Monica Driscoll Beaty, Peg Michel (Illustrator) (Eye Surgery). ISBN: 0929173244
- Children’s Consent to Surgery By Priscilla Alderson. ISBN: 0335157327
- Chris Gets Ear Tubes By Betty Pace. ISBN: 093032336X
- David’s Story: A Book About Surgery (Meeting the Challenge) By Benjamin Brink. ISBN: 0822525771
- Good-Bye Tonsils By Juliana Lee Hatkoff and Craig Hatkoff. ISBN: 0670897752
- Koko Bear’s Big Earache: Preparing Your Child for Ear Tube Surgery By Vicki Lansky. ISBN: 1931863423
- Learning About Your Health: Tonsillitis By Kenneth Burles. ISBN: 1571032576
- Let's Talk About When You Have Your Tonsils Out By Melanie Apel Gordon. ISBN: 0823954188
- Rhino By Sheila Solomon Klass (Facial Surgery). ISBN: 0590442511
- Rita Goes to the Hospital By Martine Davison. ISBN: 0679818200
- Tubes in My Ears: My Trip to the Hospital By Virginia Dooley. ISBN: 1572551186
- List of Hospitals with Parental Presence During Induction : A list of hospitals that are currently allowing parental presence during induction to help alleviate patient stress and anxiety. Compiled and updated in November 2009 by Joy Daugherty, MBA/HCM, CCLS & Julianne Gaspard, CCLS (Source: Child Life Council list serve 2006-2009)
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- How We Can Heal the World, One Visit At a Time By Patch Adams
The following transcript is from a 2004 CLC Conference panel discussion entitled "Child Life: Supportive v. Therapeutic." Key speakers in the discussion were Michael Towne, Diane Rode, Joy Goldberger, Richard Thompson, and Kathleen McCue. Also listed is a case study presented at the 2005 conference entitled "A Garden, Two Brothers and Variations on a Theme of Mourning."
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